Body
Alcoholics Anonymous
AA - Online
Online Intergroup of Alcoholics Anonymous
https://aa-intergroup.org/
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Aphasia
National Aphasia Association
naa@aphasia.org | no phone
National Aphasia Association
P.O.Box 87, Scarsdale, NY 10583
https://www.aphasia.org/
Northwestern Medicine Mesulam Center for Cognitive Neurology
Monthly support group for family and care partners of people with PPA primary progressive aphasia. Meets online the third Monday of each month from 4:30 to 6:00 p.m. Contact Darby Morhardt, PhD, LCSW, d-morhardt@northwestern.edu, 312-908‐9432 There is no fee to participate.
http://www.brain.northwestern.edu/care-and-support/ftd-ppa-support.html
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Arthritis and Joint Conditions
Lupus Foundation of America - find chapter near you
1-800-258-7872
https://www.lupus.org/resources/find-support-near-you
- Northern and Central Illinois - Illinois Chapter
- Southern Illinois - Heartland Chapter
Lupus Society of IL - Chicago Chapter and IL
312-542-0002
https://www.lupusil.org/get-involved/support-groups-2/
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National Ataxia Foundation
Support Groups - National Ataxia Foundation
Minneapolis, MN 55426
763-553-0020
https://www.ataxia.org/support-groups/
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Brain Injury
American Brain Tumor Association Support
800-886-ABTA (2282)
https://www.abta.org/about-brain-tumors/social-emotional-support/
Brain Injury Association of IL List of sites
800-699-6443
https://www.biail.com/support.htm
Brain Injury Association of America-National
1-800-444-6443
https://www.biausa.org/find-bia
Brain Aneurysm Foundation Support Group
888-272-4602
https://www.bafound.org/recovery/support-groups/
Synapse House
(877) 932-1120
https://synapsehouse.org/
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Burn
Burn Survivor Support - Burn Institute
(858) 541-2277
https://burninstitute.org/burn-survivor-programs/
Phoenix Society
800-888-2876
http://www.phoenix-society.org/
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Cancer Rehabilitation
American Cancer Society
800.227.2345
https://www.cancer.org/treatment/support-programs-and-services.html
Cancer Care Support Groups
800‑813‑HOPE (4673)
https://www.cancercare.org/tagged/support_groups
Imerman Angels
866-IMERMAN (463-7626)
https://imermanangels.org/
Gilda's Club
312-464-9900
https://www.gildasclubchicago.org/
Cancer Wellness Center
847-509-9595
https://www.cancerwellness.org/
Surviving Breast Cancer
https://www.survivingbreastcancer.org/
ThyCA Thyroid Cancer Support Groups
877-588-7904
http://www.thyca.org/sg/
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Cardiac Dysfunction
American Heart Association-National
1-800-242-8721
https://supportnetwork.heart.org/
American Heart Association-IL
312-346-4675
https://www.heart.org/en/affiliates/illinois/chicago
Heart Transplant and Ventricular Assist Device (VAD) Support Groups
NOTE: Hospitals below request that you attend support groups at the hospital where you had the transplant OR LVAD placed.
Northwestern Medicine-Bluhm Cardiovascular Institute
312-664-3278
https://www.nm.org/conditions-and-care-areas/treatments/ventricular-assist-devices#:
Loyola Medicine-Center for Heart and Valve Medicine
888-584-7888
https://www.loyolamedicine.org/locations/center-heart-vascular-medicine
University of Chicago Medicine-Transplantation and Circulatory Support
1-888-824-0200 or 1-773-834-7819
https://www.uchicagomedicine.org/conditions-services/heart-vascular/heart-failure
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Cerebral Palsy
Cerebral Palsy Foundation
212 520 1686
https://www.yourcpf.org/blogs/
- CP Channel subscribe or download app
https://www.yourcpf.org/cp-channel-subscribe/
https://apps.apple.com/us/app/cp-channel/id1276600140
UCP Sequin-Chicago
(708) 863-3803
https://ucpseguin.org/
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Chronic Pain
American Chronic Pain Association
1-800.533.3231
https://www.theacpa.org/about-us/support-groups/
National Fibromyalgia & Chronic Pain Association
801-200-3627
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COVID-19 Survivors - online groups
Covid Survivors for Change
covidsurvivorsforchange.org/survivor-resources/
Survivor Corps
Facebook support group:
www.facebook.com/groups/COVID19survivorcorps/
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Grief
GriefShare
There are thousands of GriefShare groups meeting weekly at locations around the world. There’s probably one near you! The program is designed so that you can join the group at any time. You will be welcomed and encouraged.
Email: info@griefshare.org Phone: 800-395-5755 International: 919-562-2112
https://www.griefshare.org/
JourneyCare
Losing a loved one can be one of the most difficult challenges in life. The grief process can includes a range of feelings and reactions. Learning the impact of grief and how to cope are some of the best ways to begin healing.
1-844-6-JOURNEY (844-656-8763)
https://journeycare.org/grief-support/group-support/
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Guillain-Barré syndrome
Guillain-Barré syndrome - Facebook Support Group
*many have found support and relief in this open group.
https://www.facebook.com/pages/category/Community/Guillian-Barre-Syndrome-Support-Group-118128741585652/
Living with Polyneuropathy CIDP, GBS, & CMT
modsupport@bensfrinds.org
GBS/CIDP Foundation International Support
866-224-3301 (Must call for information on support group and arranging for a peer mentor).
https://www.gbs-cidp.org/support/
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Limb Loss & Impairment
Amputee Coalition of America Support
888/267-5669
https://www.amputee-coalition.org/support-groups-peer-support/support-group-network/
Central IL Amputees (CIA)
(217)663-8064
http://www.disabilityresourceexpo.org/resource/central-illinois-amputee-cia-support-group/
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Multiple Sclerosis
NorthShore MS Caregivers Support Group
Meets every 3rd Wednesday of the month at 7:00 PM at NorthShore's Skokie Hospital, Room C (1041A)
9600 Gross Point Road, Skokie, IL 60076
1-312-331-0466
millerfam2145@gmail.com
National Multiple Sclerosis Society- National
www.nationalmssociety.org/Resources-Support/Find-Support
https://nms2cdn.azureedge.net/cmssite/nationalmssociety/media/msnationalfiles/brochures/msfriends-informational-flyer.pdf
1-800-344-4867
Greater IL MS Society
www.nationalmssociety.org/Chapters/ILD
1-800-344-4867
Multiple Sclerosis Support Online | MS Social Network - MyMSTeam
https://www.mymsteam.com/
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Lung & Pulmonary
American Lung Association Online Support Groups
https://www.lung.org/support-community/online-support-communities
UNOS Support groups by state
https://transplantliving.org/community/support-groups/
The University of Chicago-Lung Transplant Program
Contact: Fran Hammon
1-773-702-4608
Loyola University Medical Center-Lung Transplant Center
Contact: Susan Long
708-216-5454
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Ostomy
United Ostomy Association of America
Supports, empowers and advocates for people who have had or will need an ostomy.
www.ostomy.org/
P.O. Box 525
Kennebunk, ME 04043-0525
1-800-826-0826
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Parkinson's Disease & Neurologic Conditions
American Parkinson Disease Association support
1-800-223-2732
https://www.apdaparkinson.org/resources-support/
Northwestern Medicine Parkinson's Support Groups - Chicago
downtown and also online support groups
1-312-503-4397
https://www.nm.org/conditions-and-care-areas/neurosciences/movement-disorders/patient-support-and-information/support-groups/downtown-parkinsons-disease-support-groups
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Pediatric & Adolescent Rehabilitation
American Brain Tumor Association-pediatric
1-800-886-2282
https://www.abta.org/about-brain-tumors/caregiving/pediatric-caregiver-resources-center/
Child Neurology Foundation (parent peer support)
888.417.3435
https://www.childneurologyfoundation.org/support-for-patients-caregivers/
Childrens Oncology Group Support
https://childrensoncologygroup.org/
Family Resource Center for Children with Disabilities
312-939-3513
https://frcd.org/
United Cerebral Palsy Association-National
1-800-872-5827
https://ucp.org/
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Spinal Cord Injury
Backbones
618-724-5484
https://backbonesonline.com/
Christopher and Dana Reeve Foundation support
1-800-539-7309
https://www.christopherreeve.org/get-support
Facing Disability: online peer support videos
312-284-2525
https://facingdisability.com/
GUSU2Cure
info@gusu2cure.org
https://www.gusu2cure.org/
United Spinal Association
1-800-962-9629
https://unitedspinal.org/
Spinal Cord Injury – Gun Violence Survivor Peer Support Group
This is a social/support group for people who have survived a gunshot and are now paralyzed from a spinal cord injury.
https://unitedspinal.org/new-group-for-gunshot-survivors/
Please request Zoom link at RSA@rochesterspinalassociation.org
Spinal Cord Injury Association-IL
708-671-1808
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Stroke Recovery
American Stroke Association - Support Group Finder
1-800-AHA-USA-1
https://www.stroke.org/en/stroke-support-group-finder
Stroke Survivors Empowering Each Other (SSEEO)
1-888-988-8047
https://sseeo.org/
Life After Stroke radio Podcast
Support with Christopher Ewing
Available on Apple, spotify, google, and iheart.
http://www.thestrokechannel.tv/radiopodcast.html
RUSH - Stroke Support Group [no web link]
For caregivers and stroke survivors
Meets on the 2nd Tuesday on ZOOM, 2-3pm CST
Contact Gail Valadez: 312-563-2994 | Gail_Valadez@rush.edu
______________________________________
Spina Bifida
Spina Bifida Association
(800) 621-3141
https://www.spinabifidaassociation.org/
_______________________________________
Vestibular Disorders
Vestibular Disorders Association support
800.837.8428
https://vestibular.org/support_groups
____________________________________________________________________
You may also be interested in:
Listing: Support Groups at the Shirley Ryan AbilityLab
Peer Mentor Program at the Shirley Ryan AbilityLab
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